Community services in SEL
- London Learning Disabilities and Autism Key Publications. Community Learning Disability Services (CLDS).
- How to assess patients with LD during covid
Patients with LD have a higher incidence of respiratory disease and may be significantly impacted by the coronavirus. This document is a practical guide to how to approach assessment and care in these patients.
- NHSE and Improvement have provided a Support Pack for GP Practices Restarting Annual Learning Disability Health Checks, please see this guidance for more information on Annual Health Checks and people with Learning Disabilities
STOMP/STAMP online medication pathway
The Challenging Behaviour Foundation (CBF) have produced this resource as part of the NHS programme for Stopping the Over-Medication of People with a learning disability, autism or both (STOMP). This practical resource has been developed with and for families of people with learning disabilities, autism or both who are prescribed or may be prescribed psychotropic medication. The online resource is here.
Vaccination support information
GSTT’s Community LD Nurses have created a toolkit including a conversation tool to aide consent process, information for supporters regarding needle phobia and collated easy-read information about the vaccines in both leaflet and presentation format.
- ‘Covid-19 vaccine conversation recording sheet’
- ‘overcoming needle phobia presentation’
- ‘Covid-19 conversations accessible easy read tool appendix’
- ‘supporting AWLD around Covid-19 & Vaccination Programme presentation’
Mencap have also created an easy read resource to support people with learning disabilities with Coronavirus and the vaccine.
The Annual Health Check Toolkit has been developed by the NHS England and Improvement London team, colleagues across London including South East London CCG colleagues. It’s designed to guide GPs through all aspects of supporting people with Learning Disabilities through Annual Health Checks, including holding part of the consultations virtually due to the pandemic.
https://www.keepsafe.org.uk/ has a list of free to use easy read posters on lots of topics, including Coronavirus, accessing the NHS, PPE, accessing food banks and domestic abuse in lockdown.
The Challenging Behaviour Foundation have produced guidance to provide families and carers of people with Learning Disabilities with the information they need around supporting their loved one or service user with the Covid-19 vaccination. This includes guidance on the vaccine, what reasonable adjustments they can make to reduce stress and other support available
NHSE/I Primary Care have developed an easy read COVID-19 Immunisation letter template for use by local vaccination services. It is currently recommended communication and invitations for autistic people and those with a learning disability in an at risk group should be invited via local vaccination service as the primary route to ensure appropriate reasonable adjustments can be facilitated. In line with the government guidelines on cohort prioritisation set by JCVI, autistic people or those with a learning disability are invited for their vaccination when eligible
Covid-19 and Down syndrome (added 19th November 2020)
In light of the recent analysis by Public Health England, that deaths from Covid-19 were ‘six times higher’ among people with learning disabilities, and the new government rules on shielding for people with Down’s syndrome, we’ve been asked by Mencap to publicise this resource pack from the Down’s Syndrome Association, to help all health and social care professionals understand the current issues facing this cohort.
Information on shielding advice for adults with Down syndrome is available via the Downs Syndrome Medical Interest Group